Tag: privatehealthcare

The Surgery

It’s been a week since I have had the surgery to remove the large tumor that has been invading my skull/nose for the last 8 months or so. I couldn’t be happier that it’s out.

~me post surgery~

Don’t let the picture fool you I actually was in hysterics (a good mix of laughing and crying..mostly crying). That the surgery was over. In total the surgery took four years..I mean hours; HOURS. I lost a total of 3 litres of blood that was recycled through me as the surgery progressed. The vain that had been feeding the tumor was about 10x the normal size of a vain.

The tumor put up a fight, it was not eager to come out so a lot of cutting had to be done in order to fully removal the tumor. The surgery first began with going through my left eye (hence the black eye) were the vain feeding the tumor had to be cut off to prevent further bleeding. Once this was done the rest would be done through my nose.

To end the surgery there was a small hole in the lining of my brain a.k.a. the dura that had a small hole that had to be plastered with a bit of cartilage from my ear. Basically what I am trying to say is that everything that COULD go wrong DID go wrong.

It’s been a hard week to say the least. I am incredibly weak and most of the time suffering with dizziness, headaches, etc. that make daily tasks difficult. But, all that aside I am alive, I am relatively health, and I am tumor free.

Doctor to Doctor

The amount of doctors I have seen in my time in England is probably the most I have seen in my entire life. As with anywhere you need a referral to get to a specialist doctor. I began with registering myself as a “temporary private patient” with Kieran’s local GP. We immediately got referred to a local specialist as this was out of the scope of the GP to handle directly.

Going to the specialist we both had high hopes for some answers and maybe shed a bit of good news. Unfortunately, we were not met with either. We were told by the local specialist basically this was out of his scope, and no one in the local area would be able to assist us with us. (£200 or $260 US to be told that no one could help us). Frustrating to say the least.

With this obvious blow, and having another day without answers. We went directly to A&E where we were told that there are no specialist in the area Kieran lives in that could handle this surgery. We decided to drive down to Oxford to see if anyone there could at least refer us to someone who is a specialist in the area of my specific type of tumour. A couple of hours later, I registered with Oxford and was told that I would be contacted within the week to schedule an appointment with a specialist.

A week passes, and I finally have a set appointment with a specialist with Oxford. When arriving to the appointment the ENT specialist who saw us, was very confused as we didn’t bring any CD’s of my scans. (We were not told to bring in anything, and everything being on my phone would be sufficient enough). Without this information they unfortunately, could not help us any further.

Every turn seemed like a dead end. The only saving grace through this process, was my doctor I originally had in New Zealand. He was able to recommend a doctor here in London that had more than enough experience to handle this operation. We are fortunate enough to have an appointment booked with her this Friday for a consultation and then a surgery date booked for the 6th of February.

With all the bad news that seemed to be surrounding us at the minute, I couldn’t be more thrilled that I have a date to look forward too finally being healthy (and to putting all this far far behind me).

https://www.gofundme.com/life-saving-help-urgently-required&rcid=r01-154818443462-580adb3f04f84133&pc=ot_co_campmgmt_w